April 9, 2018

S T O R I E S - W E E K 2

Philippians 4:6-7

Brent and Alicia Miller

After 15 months of trying to conceive, and with the assistance of fertility treatments, we found out we were pregnant on February 5, 2017. We had a typical pregnancy and delivery, welcoming Rayna into the world on October 10, 2017. For the first day, she appeared completely healthy. But at her 24-hour bilirubin screening and blood test, Rayna’s levels were very high, causing her to need immediate phototherapy with the possibility of a full blood transfusion (if her bilirubin levels did not decrease quickly enough). She remained under these lights continuously, and her levels started to slowly decrease overnight. By the morning of October 12, 2017, we were hopeful she would be released the next day. Then at 9pm, as we were walking to the nursery to feed her, we were greeted by a nurse with the worst news we had ever received.

Shortly before we arrived at the nursery, the nursing staff noticed Rayna having a seizure and transferred her into the NICU. Our stomachs dropped. We were stunned by this unexpected news. Rayna was transferred to another hospital with a higher level NICU. Once we got there, a team of doctors began running tests such as lumbar punctures, an EEG, a CT, an MRI, and an MRV. Ultimately, our daughter was diagnosed with periventricular brain lesions that could result in developmental delays. This news devastated and broke us emotionally.

Rayna was discharged on October 19, 2017, without a definitive answer for the cause of her brain lesions. We have struggled for days and weeks with the reality that our daughter may not develop typically. We prayed fervently for her and for us. All we could do—which was all we needed—was to lean constantly on the Lord.

Four months later, Rayna is developing well and is even ahead in many areas, even though she continues to take anti-seizure medication and is still at risk for developmental delays. The uncertainty remains, but we are so thankful for answered prayers and will continue to trust in God’s plan for her future.